Baby Mert; July 11, 2006 - July 14, 2006

Once again, it kills me to have to post that we have lost another baby to CDH. Baby Mert passed away today. His parent's are too heartbroken to post any of the details or even that it was today that he passed away. I believe that it was today, though because they posted a comment on here last night to me. My heart just breaks for Emel and Aytekin. Please keep Angel Mert's parents and family in your prayers.

Mert

July 11, 2006 - July 14, 2006

I can't even express how much this upsets me. It drives me crazy that there isn't something that can be done to save all these babies. It seems that the doctors are there just to give the babies a chance and they do every possible thing they can do and there is nothing to say for sure that just because you are at a hospital with ECMO that your baby will make it. Those of us who's babies survived this horrible defect are so lucky, that is really what it is, luck. The babies can be doing great, awesome and then things can change in an instant. Every single CDH baby has a completely different story, they don't even know what causes it. It is so hard when you are told your options, the first was to terminate, the second was inutero surgery which is only done at like 3 hospitals in the US, and the third is to just go thru the rest of your pregnancy wondering what will happen to your baby who only has about a 50% chance of surviving. Of course, I didn't even hesitate. I knew what I wanted and boy am I glad that I made the choice I did, but it still hurts that Sofia had to go thru everything that she went thru. I could't help but feel guilty and helpless. There was nothing I could do for her, but pray and beg her everyday to keep fighting and not to leave us. There isn't a day that goes by that I don't look at her and cry at least once. I don't know what I would do without her. She is everything to me.

I am sorry, but I needed to vent. I know that what I just wrote may not make sence, but I am a women and I am upset a million things are going thru my head and I wrote what I was thinking! I am so thankful for my daughter and the fact that she is "healthy," but the pain of CDH will never go away. I can remember the day I found out that Sofia had CDH like it was yesterday and also the days in the hospital. I will never forget it. My heart goes out to all families that have ever had to deal with CDH. Please pray that one day they will find a way to save all these innocent little babies.

Thank you all for letting me vent and reading all about it. Please say a special prayer for Mert's Family and please keep all CDH babies in your prayers. God Bless

Love, Catherine