Home for a While

Well, I came home this evening to watch the Spurs game and so I have a little time before the game to update. There really isn't anything new going on, Sofia is still doing awesome and continues to get stronger everyday. Today she stayed awake with me for about 3 hours! She would doze off and I needed to lay her down and make an insurance call before they closed and she screamed the place down! I was outside of the door telling the man on the phone to please hurry cause I could hear my baby screaming! So, he did. Then Ivan got there and she woke up to see him. I left to go pump and he came up about an hour later saying that she woke up every time he tried to lay her down. She is really getting used to us holding her. I love holding her. I love when she just stares at me and cracks a little smile. She is so beautiful. Sofia is up to 14 ml per hour and her TPN is down to 2. They also took her off the lipids today. So, now we just need her to get off the TPN so that they can take out her central line. I can't wait for them to remove it cause I am so scared that I may accidentally pull it when I hold her. She is still on O2 but it is at room air which 21%, but they think that will come off in the next few days. They should be trying bottle feeding her sometime this week and then once that goes well and they see how much she is actually getting each feeding then they will let us try actual breast feeding. I really think she is ready for a bottle cause she really likes her pacifier.

Ivan and I have had a huge headache this week with trying to get all of Sofia's paper work done for the Military. We have been told different things from 3 different bases about what exactly it is that we need. I can't believe how much this stuff costs either. Hopefully we can get it done before Ivan leaves. Ugh...Like we needed all this on top of everything else. I can't tell you how many hours a day this uses up of the time we could be with Sofie.

The game has started now so I am going to go and watch it. Tomorrow morning we are doing Walk America 2006 for the March of Dimes. We will be walking with a friend of mine, Karen, who lost her daughter to CDH and also lost a son last year to Hydrops. Karen had team shirts made for everyone walking and then for all the mommies of the babies listed on the shirts. I will take pictures of them and post them when I have a chance. Thanks Karen!

Again, thank you all for thinking of our little Sofia and for keeping her in your thoughts and prayers. Please pray for all CDH babies. Oh, a few posts back my Mom had mentioned that we received a comment from Krista who was expecting a CDH baby and asked for a response from her. Well, I have found out that Krista had her baby girl on May 17th and she seems to be doing well. Please keep Krista, her daughter and her family in your prayers as they begin their battle with CDH. I will add the link to their site as soon as I get their permission, she is a beautiful baby!

HAPPY BIRTHDAY, LAUREN!

God Bless

Love, Catherine

Go SPURS Go!