We just got back from our visit with our beautiful daughter, Sofia. She is doing very well again today. They have completely weaned her off the Epinephrine which is for her blood pressure and they have starting weaning the Dopamine, also for blood pressure. Her O2 was at 55 and stayed there all day 
and her NO was at 20 still. In order for them to wean more they want her blood gas to be above 120 and the last one she had 9pm was 118. So, hopefully she will start picking that up. The docs are okay with not weaning her O2 as much for now cause they have done so much with her meds, so they want to make sure she is stable with that. No more talk about when surgery will be, they said they aren't in a rush and want to make sure she is completely stable first. Sofie hasn't been moved much today so she is starting to get swollen again. More pictures have been added to Sofia's Pictures and I will try and add all the pictures from her Daddy's camera tomorrow. Speaking of Daddy, he no longer has to leave next week on a TDY so we are very happy about that. Thank you to whoever is taking his place, you have no idea how much this means to us especially since Sofie probably won' t have her surgery until sometime during that TDY time. Well, I will update again, soon. Thank you all for your prayers for Sofia and for all CDH babies.
and her NO was at 20 still. In order for them to wean more they want her blood gas to be above 120 and the last one she had 9pm was 118. So, hopefully she will start picking that up. The docs are okay with not weaning her O2 as much for now cause they have done so much with her meds, so they want to make sure she is stable with that. No more talk about when surgery will be, they said they aren't in a rush and want to make sure she is completely stable first. Sofie hasn't been moved much today so she is starting to get swollen again. More pictures have been added to Sofia's Pictures and I will try and add all the pictures from her Daddy's camera tomorrow. Speaking of Daddy, he no longer has to leave next week on a TDY so we are very happy about that. Thank you to whoever is taking his place, you have no idea how much this means to us especially since Sofie probably won' t have her surgery until sometime during that TDY time. Well, I will update again, soon. Thank you all for your prayers for Sofia and for all CDH babies.Love, Catherine
1 comment:
Hi, Cayherine, Ivan & Yvonne,
We are all saying prayers for you.
Sofia is just beautiful and she seem so strong. I love looking at her photos. You all keep positive as I am sure everything will work out o.k.
love to you all,
XXXXXXXXXXX for Sofia.
Love Lynn, Ronnie, & family
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